Thank You to our CURETHEPROCESS™ Campaign Partners

  • Fabry Support & Information Group
  • National MPS Society
  • Advocacy for Patients with Chronic Illness, Inc.
  • Cystinosis Research Network
  • Macular Degeneration Support
  • Myelin Project
  • International Pemphigus and Pemphigoid Foundation
  • American Heart Association
  • National PKU Alliance
  • Nomid Alliance
  • Alpha One Association
  • Association of Gastrointestinal Motility Disorders
  • Beyond Batten Disease Foundation
  • Campaign Urging Research for Eosinophilia Disease (CURED)
  • Coalition for Pulmonary Fibrosis
  • GIST Support International
  • Institute for Families
  • International Castleman's Disease Organization
  • International Dravet Syndrome Epilepsy Action (IDEA) League
  • Partnership for Cures
  • VHL Family Alliance
  • The Jain Foundation
  • National Tay Sachs & Allied Diseases Association, Inc.
  • SADS Sudden Arrhythmia Death Cardiac Syndromes Foundation
  • Reflex Sympathetic Dystrophy Syndrome Association
  • Parry Romberg Syndrome Foundation
  • Russel Silver Syndrome Advocacy and Support
  • Sarcoma Foundation of America
  • Reflex Sympathetic Dystrophy Syndrome Association
  • National Gaucher Foundation
  • ARPKD/CHF Alliance
  • Ehlers-Danlos
  • Madisons Foundation
  • Sarcoma Alliance
  • Abigail Alliance
  • Cogan's Contact Network
  • Hannah's Hope
  • MUMS National Parent to Parent Network
  • National Association for Children's Heart Disorders/Kids with Hearts
  • National Marfan Foundation
  • NKH International Family Support Network
  • Organic Acidemia Association
  • Pierre Robin Network
  • The Magic Foundation
  • Liddy Shriver Sarcoma Intiative
  • CFC International
  • United Pompe Foundation
  • Solving Kids Cancer
  • Lysomal Diseases New Zealand
  • TThe Hide & Seek Foundation for Lysosomal Disease Research
  • cMPD Education Foundation
  • National Organization Against Rare Cancers
  • Ara Parseghian Medical Research Foundation
  • MLD Foundation
  • Transverse Myelitis Association
  • Addi and Cassi Fund
  • American Chronic Pain Association
  • Children's Alopecia Project
  • Children's Cardiomyopathy Foundation
  • CARES Foundation
  • CureDuchenne
  • Dandy-Walker Alliance
  • Dravet Syndrome Foundation
  • Fatty Oxidation Disorders (FOD)
  • Fetal Hope
  • TLGS Foundation
  • Parent Project Muscular Dystrophy
  • Erythromealgia Foundation
  • The Myositis Association
  • Dystrophic Epidermolysis Bullosa Research Association of America
  • Pediatric Hydrocephalus Foundation
  • Batten Disease Support and Research Association
  • Taylor's Tale
  • American Behcets Disease Association
  • Sickle Cell Disease Association of America
  • Pediatric OMS Research Fund
  • Invisible Diseases
  • Noah's Hope
  • Eurordis
  • R.A.R.E. (Rare Disease Advocacy, Research & Education) Project
  • Georgia PKU Connect
  • Iowa Ataxia Support Group
  • American College of Medical Genetics
  • Kids V Cancer
  • National Eczema Associ
  • Alliance SANFILIPPO
  • NAmerican childhood Cancer Organization
  • Hope 4 Bridget
  • FIRST Foundation for Ichtyosis & Related Skin Types
  • CORD Canadian Organization for Rare Diseases
  • Histiocytosis Association of America
  • Hayden's Batten Disease Foundation, Inc
  • Phelan-McDermid Syndrome Foundation
  • National Multiple Sclerosis Society
  • Nathan's Battle Foundation
  • National Alopecia Areata Foundation
  • Oxalosis and Hyperoxaluria Foundation
  • Periodic Paralysis Association
  • Mary Payton's Miracle Foundation
  • Julia's Hope - The Sanfilippo Syndrome Medical Research Foundation
  • Pennies For Nicoll Foundation
  • In Need of Diagnosis (INOD)
  • Hypertrophic Cardiomyopathy Association
  • American Syringomyelia & Chiari Alliance Project, Inc
  • Churg Strauss Syndrome Association
  • Chromosome Disorder Outreach
  • National Lymphedema Network, Inc.
  • Foundation for Sarcoidosis Reasearch
  • Celiac Sprue Association USA, Inc
  • CurePSP
  • The Canadian Society for Mucopolysaccharide & Related Diseases Inc.
  • Midwest Asian Heath Association
  • Monarch Rare Disease Cooperative
  • Wilson Disease Association
  • Autoimmunity Research Foundation
  • American Institue for Medical and Biological Engineering
  • Life Raft Group
  • Iron Disorders Institute
  • Hereditary Neuropathy Foundation
  • ST Dystonia
  • Canadian PKU Alliance
  • Holden's Hope
  • APFED (American Partnership for Eosinophilic Disorders)
  • Family Caregiver Alliance
  • Drew's Hope
  • Genetic & Metabolism Physchology Network
  • American Pain Foundation
  • Pulmonary Hypertension Association
  • Scleroderma Foundation
  • Wisconsin Myalgic Encephalomyelitis/ Chronic Fatigue Association
  • Hereditary Disease Circle
  • Scleroderma Research Foundation
  • The Stop ALD Foundation
  • LAM Treatment Alliance
  • Branchio-oto-Renal Sydrome Awareness
  • Charcot-Marie-Tooth Association
  • Jacob's Cure: A Fight Against Canavan Disease
  • MarbleRoad
  • The National Fragile X Foundation
  • The Children's Medical Research Foundation, A Cure for Kirby
  • New Hope Research Foundation
  • The National Craniofacial Association
  • Stennis Foundation
  • Cornelia de Lange Syndrome Foundation
  • Myelin Repair Foundation
  • United Mitochondrial Disease Foundation
  • The Adrenoleukodystrophy Foundation
  • Burning Mouth Disease - Search for a Cure
  • Blackswan Foundation
  • United Spinal Association
  • Coriell Institute for Medial Research
  • Huntington's Disease Society of America
  • The SDS/MSA Support Group
  • The CDG Family Network

Patient Organizations are partnering with us to help CureTheProcess.

• Abigail Alliance for Better Access to Investigation Drugs • Addi and Cassi Fund
• Adult Congenital Heart Association • Advocacy for Patients with Chronic Illness, Inc.
• Alliance SANFILIPPO • Alpha-1 Association
• American Autoimmune Related Diseases Association • American Behcets Disease Association
• American childhood Cancer Organization • American Chronic Pain Association
• American College of Medical Genetics • American Heart Association
• American Institue for Medical and Biological Engineering • American Pain Foundation
• American Syringomyelia & Chiari Alliance Project, Inc • APFED (American Partnership for Eosinophilic Disorders)
• APS Foundation • Ara Parseghian Medical Research Foundation
• ARPKD/CHF Alliance • Association of Gastrointestinal Motility Disorders
• Autoimmunity Research Foundation • Batten Disease Support and Research Association
• Beyond Batten Disease Foundation • Blackswan Foundation
• Branchio-oto-Renal Sydrome Awareness • Burning Mouth Disease - Search for a Cure
• Campaign Urging Research for Eosinophilia Disease (CURED) • Canadian PKU Alliance
• CARES Foundation • Celiac Sprue Association USA, Inc
• CFC International • Charcot-Marie-Tooth Association
• Children's Alopecia Project • Children's Cardiomyopathy Foundation
• Children's PKU Network • Chromosome Disorder Outreach
• Chronic Granulomatous Disease Association • Churg Strauss Syndrome Association
• cMPD Education Foundation • Coalition for Pulmonary Fibrosis
• Cogan's Contact Network • Cooley's Anemia Foundation
• CORD Canadian Organization for Rare Diseases • Coriell Institute for Medial Research
• Cornelia de Lange Syndrome Foundation • CureDuchenne Muscular Dystrophy
• CurePSP • Cystinosis Research Network
• Dandy-Walker Alliance • Dravet Syndrome Foundation
• Drew's Hope • Dystrophic Epidermolysis Bullosa Research Association of America
• Ehlers-Danlos National Foundation • Eurordis
• Fabry Support & Information Group • Family Caregiver Alliance
• Fatty Oxidation Disorders (FOD) Family Support Group • Fetal Hope
• FIRST Foundation for Ichtyosis & Related Skin Types • Foundation for Nager Miller Syndrome
• Foundation for Sarcoidosis Reasearch • Genetic & Metabolism Physchology Network
• Georgia PKU Connect • GIST Support International
• Global Genes Project • Hajdu-Cheney Syndrome Support Group
• Hannah’s Hope Fund • Hayden's Batten Disease Foundation, Inc
• Hereditary Disease Circle • Hereditary Neuropathy Foundation
• Histiocytosis Association of America • Holden's Hope
• Hope 4 Bridget • Huntington's Disease Society of America
• Hydrocephalus Association • Hypertrophic Cardiomyopathy Association
• In Need of Diagnosis (INOD) • Institute for Families
• International Castleman's Disease Organization • International Dravet Syndrome Epilepsy Action (IDEA) League
• International Pemphigus and Pemphigoid Foundation • Intractable Childhood Epilepsy Association
• Invisible Diseases • Iowa Ataxia Support Group
• Iron Disorders Institute • ISMRD, International Society for Mucolipidosis & Related Disorders
• Jacob's Cure: A Fight Against Canavan Disease • John F. & Aileen A. Crowley Foundation
• Julia's Hope - The Sanfilippo Syndrome Medical Research Foundation • Kids V Cancer
• LAM Treatment Alliance • LGS Foundation
• Liddy Shriver Sarcoma Intiative • Life Raft Group
• Lysomal Diseases New Zealand • Macular Degeneration Support
• Madisons Foundation • MarbleRoad
• Mary Payton's Miracle Foundation • Midwest Asian Heath Association
• MLD Foundation • Monarch Rare Disease Cooperative
• MUMS National Parent to Parent Network • Myelin Project
• Myelin Repair Foundation • Myeloproliferative Disease Support
• Nail Patella Syndrome Network Support Group • Nathan's Battle Foundation
• National Alopecia Areata Foundation • National Association for Children's Heart Disorders/Kids with Hearts
• National Eczema Association • National Gaucher Foundation
• National Lymphedema Network, Inc. • National Marfan Foundation
• National MPS Society • National Multiple Sclerosis Society
• National Niemann-Pick Disease Foundation • National Organization Against Rare Cancers
• National PKU Alliance • National Tay-Sachs & Allied Diseases Association, Inc.
• New Hope Research Foundation • NKH International Family Support Network
• Noah's Hope--Batten Disease Fund • Nomid Alliance
• Organic Acidemia Association • Oxalosis and Hyperoxaluria Foundation
• Parent Project Muscular Dystrophy • Parry Romberg Syndrome Foundation
• Partnership for Compassionate Use Therapies • Partnership for Cures
• Pediatric Gastroesophagel Reflux Disease Foundation • Pediatric Hydrocephalus Foundation
• Pediatric OMS Research Fund • Pennies For Nicoll Foundation
• Periodic Paralysis Association • Phelan-McDermid Syndrome Foundation
• Pierre Robin Network • Potentials Foundation
• Pulmonary Hypertension Association • R.A.R.E. (Rare Disease Advocacy, Research & Education) Project
• Reflex Sympathetic Dystrophy Syndrome Association • Retinitis Pigementosa International
• Russell Silver Syndrome Advocacy and Support • SADS Sudden Arrhythmia Death Cardiac Syndromes Foundation
• Sarcoma Alliance • Sarcoma Foundation of America
• Scleroderma Foundation • Scleroderma Research Foundation
• Sickle Cell Disease Association of America • Society for Inherited Metabolic Disorders
• Solving Kids Cancer • ST Dystonia
• Stennis Foundation • Taylor's Tale
• The Adrenoleukodystrophy Foundation • The Canadian Society for Mucopolysaccharide & Related Diseases Inc.
• The CDG Family Network • The Children's Medical Research Foundation, A Cure for Kirby
• The Erythromelalgia Association (TEA) • The Hide & Seek Foundation for Lysosomal Disease Research
• The Jain Foundation • The Magic Foundation
• The Myositis Association • The National Craniofacial Association
• The National Fragile X Foundation • The Ryan Foundation for MPS Children
• The SDS/MSA Support Group • The Stop ALD Foundation
• Transverse Myelitis Association • United Mitochondrial Disease Foundation
• United Pompe Foundation • United Spinal Association
• VHL Family Alliance • Wilson Disease Association
• Wisconsin Myalgic Encephalomyelitis/ Chronic Fatigue Association
 
 
 
 
 
 
 

If your organization would like to join our list of endorsers and Partner with us to CureTheProcess, please call 415-884-0223.